Terry Pratchett donates $1 million to Alzheimer’s research

13 March 2008 (19:50) Appearances Alzheimer's Interviews Terry Pratchett News News Archives

Many news sources are reporting today that Terry Pratchett has donated $1 million to the Alzheimer’s Research Trust, deploring the lack of funding for research and support for those affected by the disease. Funding per cancer patient is £289, compared to the £11 spent per Alzheimer’s research. (That’s more than 25 times more per patient.)

Chief Executive of the Alzheimer’s Research Trust Rebecca Wood said, “Terry’s generous donation will fund promising UK research which hopes to find ways to slow down or halt the disease. The reality is that [now] we are scraping for every penny and have to turn down two out of every three research projects.”

“There is a kind of heroic glamour about the battle against cancer. We use the language ‘the battlefield,’ or there is a battle, whereas frankly with Alzheimer’s it is a lot of skirmishing … I don’t think any cure is going to be discovered in my lifetime… but I think there might be a regime, some combination of lifestyle and drugs which helps people live with Alzheimer’s,” the AFP quotes Terry Pratchett as saying.

The TimesOnline reports that Terry Pratchett described Alzheimer’s as “[stripping] away your living self a bit at a time” and “a nasty disease, surrounded by shadows and small, largely unseen tragedies.”

“Part of me lives in a world of new age remedies and science, and some of the science is a little like voodoo, but science was never an exact science, and personally I’d eat the arse out of a dead mole if it offered a fighting chance.”

“There’s nearly as many of us as there are cancer sufferers, and it looks as if the number of people with the disease will double within a generation … It’s a shock and a shame to find out that money for [Alzheimer’s] research is 3 per cent of that which goes to find cancer cures. Perhaps that is why, for example, I know three people who have successfully survived brain tumours but no one who has beaten Alzheimer’s.”

“I’d like a chance to die like my father did – of cancer, at 86 . . . Before he went to spend his last two weeks in a hospice he was bustling around the house, fixing things. He talked to us right up to the last few days, knowing who we were and who he was.”

“I want to go on writing. You can’t write books when you are dead, unless your name is L. Ron Hubbard.”

The press release can be seen on PJSMprints.com, and you can read Terry Pratchett’s full speech at the Alzheimer’s Research Trust conference in Watershed, Bristol this morning, Thursday, March 13th.